Perspectives

International LGS Awareness Day: Raising Awareness Through a Caregiver’s Journey

 

The symptoms and disorders we focus on are often lifelong and profoundly disruptive to a person’s everyday life. At Jazz, we know people are counting on us, and we take that responsibility seriously—it guides the decisions we make and how we conduct our business. Raising awareness of serious diseases like Lennox-Gastaut Syndrome (LGS), a developmental brain disorder that frequently evolves from early-life-onset epilepsy and impacts approximately 48,000 children and adults in the U.S., is an important part of our effort to address the challenges these patients, their families and caregivers face.

International LGS Awareness Day, which takes place every year on November 1, marks an important moment in time for the LGS community. In order to help raise awareness and broaden an understanding of this rare form of epilepsy, we sat down with Dr. Tracy Dixon-Salazar, Executive Director of the LGS Foundation, to learn more about the impact of the disorder, as well as how individuals can help spread awareness of LGS.

Dr. Dixon-Salazar is a neuroscientist, geneticist, patient advocate and most importantly, a caregiver to her daughter Savannah, who was diagnosed with LGS at the age of five. In our discussion, Dr. Dixon-Salazar shares the importance of advocating for patients in need and how observances like International LGS Awarness Day are important for the LGS community.