Advancing Care in Rare Disease
Every rare disease story begins with a patient and a family searching for answers, support and hope. At Jazz, their experiences shape our priorities and fuel our determination to do more. Our long-standing focus in rare epilepsies, cancers and sleep disorders has shown us what’s possible when innovation is guided by unmet needs. As we expand our capabilities and sharpen our strategic focus on rare disease, we remain driven by our purpose to innovate to transform the lives of patients and their families.
Patient and Caregiver Stories
Jace’s Story
Lisa shares the story of her son Jace, who faced his diagnosis of a rare brain cancer with courage and compassion. His outlook continues to inspire the support Lisa now offers to other families navigating childhood cancer.
Sam’s Story
Narcolepsy is a condition that is often misunderstood, overlooked and underdiagnosed. Many people will write off excessive daytime sleepiness in teenagers because it is assumed teenagers want to sleep more often. Sam lived more than a decade experiencing symptoms of narcolepsy without a diagnosis.
Armando’s Story
Armando’s journey with cholangiocarcinoma (CCA), a rare biliary tract cancer, reflects the power of connection and resilience. Throughout his experience, he shared how the support of loved ones brought him strength and peace. His words continue to inspire the cancer community, honoring the courage and spirit he carried into every conversation.
Shining a Light on the Importance of Caregiving
Receiving a diagnosis of any kind has implications not just for the person on the receiving end, but also for their family, friends and the people closest to them. As part of our commitment to patients and their care teams, this National Family Caregivers Month, we shine a light on this essential role and its many nuances.
Hear from our President and CEO
Renee Gala, our President and CEO, talks about our focus on redefining possibilities for people living with rare disease.