Patient Stories

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When Cammy was seven weeks old, Meghan, Cammy’s mother, recognized that something wasn’t right when Cammy’s arm would shake involuntarily. After a number of tests and a visit to the hospital, Cammy was diagnosed with tuberous sclerosis complex, a rare form of epilepsy. It was in this moment that both Meghan and Cammy’s lives would change forever.

During National Family Caregivers Month, we recognize and honor family caregivers who dedicate time and resources to caring for their loved ones. Jazz is committed to raising awareness of the essential role that caregivers play and the challenges they face, and to educating communities on ways to increase support for them.

Living an adventurous life at the age of 22, Caroline thought she was pursuing her dream. At the time, she was living in Korea, where she was teaching elementary school and applying for her Ph.D. after completing a bachelor’s degree in Immunology from the University of Edinburgh. She never would have suspected that what she thought was just a regular cold, maybe caught from her young students, would ultimately lead to a life-changing and potentially life-threatening diagnosis.

While Mark has been living with essential tremor (ET) for more than 40 years, his condition has grown progressively worse for the last three decades, creating significant problems in his day-to-day life. As a middle school teacher, he found it increasingly challenging to complete simple tasks, like writing on the board or grading papers.