Patient Stories

featured story

When Cammy was seven weeks old, Meghan, Cammy’s mother, recognized that something wasn’t right when Cammy’s arm would shake involuntarily. After a number of tests and a visit to the hospital, Cammy was diagnosed with tuberous sclerosis complex, a rare form of epilepsy. It was in this moment that both Meghan and Cammy’s lives would change forever.

When Steve began experiencing flu-like symptoms, he and his wife Crystal didn’t think his condition was serious. His primary care physician and urgent care doctors thought he might have mononucleosis or tonsillitis, but Steve and Crystal knew these theories were unlikely since Steve had his tonsils removed as a child. When he realized antibiotics weren’t improving his symptoms, Steve decided to visit the emergency room. Crystal was at an after-school activity when she received a call from Steve to tell her he had leukemia.

When Meaghan was pregnant with her second child, she found herself struggling to get out of bed. Many people assumed she was experiencing depression because she was also coping with the recent death of her brother. What was really going on with her brain wouldn’t be properly diagnosed for another four years.

When Norman was diagnosed with an aggressive form of acute myeloid leukemia (AML), doctors told him the odds were against him. When it came time for a bone marrow transplant, no donors could be found. Then a woman in Germany, who signed up for the registry two days prior, emerged as a match.