When Willow, an active, healthy five-year-old began experiencing unusual symptoms like decreased appetite and fatigue, her mother, Valerie, didn’t assume the worst. But after her bloodwork came back abnormal – showing a critically low platelet count – Valerie’s concerns grew. It was around midnight the following day when a medical team from Children’s National Hospital in DC delivered the news that Willow had acute lymphoblastic leukemia (ALL).
Narcolepsy is a condition that is often misunderstood, overlooked and underdiagnosed. Many people will write off excessive daytime sleepiness in teenagers because it is assumed teenagers want to sleep more often. Sam lived more than a decade experiencing symptoms of narcolepsy without a diagnosis.
This page is intended for U.S. residents only. We are not accepting requests from individuals in states other than California, Washington and Nevada. If you are not a resident of any of these states, please do NOT continue.
Please select and enter the required fields on the form below. We need this information to process your request and to take necessary steps to verify your identity. We will contact you if we need any additional information.
Please note that your rights may vary under applicable state privacy laws and may be subject to limitations.
