Patient Stories

featured story

When Cammy was seven weeks old, Meghan, Cammy’s mother, recognized that something wasn’t right when Cammy’s arm would shake involuntarily. After a number of tests and a visit to the hospital, Cammy was diagnosed with tuberous sclerosis complex, a rare form of epilepsy. It was in this moment that both Meghan and Cammy’s lives would change forever.

Narcolepsy is a condition that is often misunderstood, overlooked and underdiagnosed. Many people will write off excessive daytime sleepiness in teenagers because it is assumed teenagers want to sleep more often. Sam lived more than a decade experiencing symptoms of narcolepsy without a diagnosis.