Patient & Caregiver Stories
Lisa shares the story of her son Jace, who faced his diagnosis of a rare brain cancer with courage and compassion. His outlook continues to inspire the support Lisa now offers to other families navigating childhood cancer.
When Norman was diagnosed with an aggressive form of acute myeloid leukemia (AML), doctors told him the odds were against him. When it came time for a bone marrow transplant, no donors could be found. Then a woman in Germany, who signed up for the registry two days prior, emerged as a match.
Narcolepsy is a condition that is often misunderstood, overlooked and underdiagnosed. Many people will write off excessive daytime sleepiness in teenagers because it is assumed teenagers want to sleep more often. Sam lived more than a decade experiencing symptoms of narcolepsy without a diagnosis.