Patient & Caregiver Stories
When Sam was diagnosed with a complex presentation of T-cell lymphoblastic lymphoma (T-LBL), his family and care team faced extraordinary challenges. As a young boy living with Down syndrome, his care required special medical support, family devotion and a strong community around them. Sam's story is featured as part of the Medical Stories docuseries, independently produced with Jazz Pharmaceuticals as a series sponsor.
When Meaghan was pregnant with her second child, she found herself struggling to get out of bed. Many people assumed she was experiencing depression because she was also coping with the recent death of her brother. What was really going on with her brain wouldn’t be properly diagnosed for another four years.
When Norman was diagnosed with an aggressive form of acute myeloid leukemia (AML), doctors told him the odds were against him. When it came time for a bone marrow transplant, no donors could be found. Then a woman in Germany, who signed up for the registry two days prior, emerged as a match.
Narcolepsy is a condition that is often misunderstood, overlooked and underdiagnosed. Many people will write off excessive daytime sleepiness in teenagers because it is assumed teenagers want to sleep more often. Sam lived more than a decade experiencing symptoms of narcolepsy without a diagnosis.