To address the low understanding of idiopathic hypersomnia (IH), Jazz partnered with the Hypersomnia Foundation to launch I Have IH, a disease awareness campaign aimed at increasing knowledge of IH. In a previous Our Stories article, we focused on results from the patient and supporter surveys that unveiled the difficult and prolonged diagnosis journey people with IH and their supporters often endure. In this piece, we focus on additional results from the surveys that show the debilitating effects IH has on day-to-day life.

Idiopathic hypersomnia (IH) is a debilitating neurologic sleep disorder that is not common or widely understood. To address this lack of knowledge around the condition, Jazz partnered with the Hypersomnia Foundation to launch I Have IH, an awareness campaign highlighting physician, patient and supporter perspectives to better understand the level of knowledge of IH and its real-life impact on those living with the disorder.

As a dedicated supporter of the small cell lung cancer (SCLC) community, Jazz is focused on driving awareness of the fact that there is nothing small or unimportant about SCLC. To support this goal, Jazz and collaborators from the broader healthcare community launched Nothing Small About It (NSAI), a campaign providing solutions to reduce SCLC-related disparities.

When Cammy was seven weeks old, Meghan, Cammy’s mother, recognized that something wasn’t right when Cammy’s arm would shake involuntarily. After a number of tests and a visit to the hospital, Cammy was diagnosed with tuberous sclerosis complex, a rare form of epilepsy. It was in this moment that both Meghan and Cammy’s lives would change forever.

During National Family Caregivers Month, we recognize and honor family caregivers who dedicate time and resources to caring for their loved ones. Jazz is committed to raising awareness of the essential role that caregivers play and the challenges they face, and to educating communities on ways to increase support for them.

Living an adventurous life at the age of 22, Caroline thought she was pursuing her dream. At the time, she was living in Korea, where she was teaching elementary school and applying for her Ph.D. after completing a bachelor’s degree in Immunology from the University of Edinburgh. She never would have suspected that what she thought was just a regular cold, maybe caught from her young students, would ultimately lead to a life-changing and potentially life-threatening diagnosis.

One of the most common symptoms of multiple sclerosis (MS) is spasticity, a complex and multi-dimensional symptom which often causes involuntary muscle stiffness and/or spasms, occurring in more than 80 percent of patients with MS.

Epilepsy is a neurological disorder characterized by the occurrence of at least two unprovoked seizures occurring more than 24 hours apart or by one unprovoked seizure with a high probability of further seizures.

Idiopathic hypersomnia (IH) is a debilitating neurologic sleep disorder characterized by chronic excessive daytime sleepiness. Despite the physical and mental impact of the condition, the road to diagnosis and appropriate treatment can be long and filled with challenges.

We celebrated International Women’s Day and Women’s History Month with awareness-building events and engaging sessions with our Jazz Association of Women Supporters (JAWs) employee-led Affinity Forum, including a very special event for our employees featuring Brooke Baldwin, award-winning journalist and author of the book, Huddle: How Women Unlock Their Collective Power. After hearing from Brooke and having a rich dialogue, we closed out our Women’s History Month event with the announcement of distinguished recognition for two of our Jazz colleagues by the Healthcare Businesswomen’s Association (HBA) as 2022 honorees in the healthcare industry.

At Jazz, we push ourselves and other stakeholders to think holistically about patients’ health to minimize the risk of patient co-morbidities and address significant unmet needs. To learn more about the often-overlooked co-morbidities associated with narcolepsy and the progress Jazz has made to address them, Jazz’s Dr. Todd Kirby spoke with sleep specialist Dr. Richard K. Bogan.

At this year’s virtual J.P. Morgan Healthcare Conference, we presented key achievements and announced Vision 2025 to deliver sustainable growth and enhanced value. Guided by our patient-centric approach, Jazz is committed to taking bold steps to deliver life-changing therapies that create new or better standards of care.